Little girl from Ontario sleeping just one hour a day because a rare and incurable disease
News24xx.com - Ever Hisko a girl from Renfrew, Ontario was born normal and healthy. However, soon after being born, her parents, Robin Audette and Kirk Hisko noticed that something odd about Ever. The baby refused to eat and was always crying. She was unhappy.
They soon learned that Ever had GERD (gastroesophageal reflux disease). Fortunately, the disease could be treated with medication. Ever soon returned to being a normal and happy baby. When things were looking happy and normal, Ever’s parents once again noticed something wrong with her.
At two years old, Ever seemed to be behind in learning how to speak and move. The oddest thing would be that she never slept. But even though she didn’t sleep, Ever was cheerful and happy. Though the recommended sleep for toddlers at three years old is at least 10 hours, Ever sleeps for only an hour. Unfortunately for Ever’s parents, their sleep is disrupted because of this.
Ever’s mother says: ‘If we can get slept four-six hours, its good. But there are nights, that she wakes up after an hour and a half, and she not slept for six hours. We’re only human and we need to sleep – but she doesn’t. It’s amazing, she can function with no sleep and still be happy".
Audette says: " I'd never heard of Angelman syndrome. It’s so strange to have never heard of something that in an instant can become your whole world."
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